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Humbled

24 Mar

A quick personal update…

I spent half of this week at the children’s hospital with Harry, due to the increasing number of seizures he was experiencing (roughly 10 to 20 per day).  These seizures cause Harry to go stiff and fall over, usually with a big thud as his head hits the ground.

In our hospital room there were 5 other children.  Three of the five were wheelchair-bound, two of whom were severely disabled.  To be honest, I was a bit embarrassed to call myself a special needs parent – my job is not nearly as tough as what was required of their parents.  I was honestly touched and humbled by the warmth and friendship shown to me by these wonderful parents.

Harry now has to wear a helmet until the seizures are under control, and we have a new drug regime to try, so fingers crossed it all goes well.  To the mum’s who took me under their wing – thank you, it is truly appreciated.

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3 Comments

Posted by on March 24, 2012 in Uncategorized

 

3 responses to “Humbled

  1. Teresa Spencer

    March 24, 2012 at 9:07 pm

    its nice to have friends around you who are also going through the same thing as you and can understand your feelings

     
  2. embracingtheimperfections

    March 24, 2012 at 10:53 pm

    So sorry to hear about Harrison’s trip to hospital. A family we know (mum is a doctor) put their daughter on a modified Atkins diet – basically reducing carbs and it significantly reduced the number of seizures their daughter was having. She went from up to 20 a day to 3 a month. Hang in there 🙂

     
  3. cpkidsmountainclimbers

    March 25, 2012 at 11:21 am

    Was it the Ketogenic diet? I have heard it is very strict, but can have good results. It is something I am thinking about – but I worry a little about it being “balanced” enough for a young child. When you consider it is a drug free option, it is worth looking into! Amazing the impact diet can have.

    Interestingly (although a little off topic) a gluten free and casein free diet has showed really good results with children with ASD. http://www.sciencedaily.com/releases/2012/02/120229105128.htm

     

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