A quick personal update…
I spent half of this week at the children’s hospital with Harry, due to the increasing number of seizures he was experiencing (roughly 10 to 20 per day). These seizures cause Harry to go stiff and fall over, usually with a big thud as his head hits the ground.
In our hospital room there were 5 other children. Three of the five were wheelchair-bound, two of whom were severely disabled. To be honest, I was a bit embarrassed to call myself a special needs parent – my job is not nearly as tough as what was required of their parents. I was honestly touched and humbled by the warmth and friendship shown to me by these wonderful parents.
Harry now has to wear a helmet until the seizures are under control, and we have a new drug regime to try, so fingers crossed it all goes well. To the mum’s who took me under their wing – thank you, it is truly appreciated.